Retinoblastoma: a curable, rare and deadly blinding disease

Retinoblastoma is a rare condition with devastating consequences. If left untreated, it can lead to loss of the eye, invasion of the brain and death. In this issue, we offer information and guidance about the detection, diagnosis and treatment of retinoblastoma, including advice about screening for family members when genetic testing is not available, and a step-by-step guide to enucleation. We hope that every health professional reading this journal will raise awareness of this condition so that – globally – we have a better chance to save the life, eyes and sight of children with retinoblastoma.
We wish to acknowledge the Retinoblastoma Network (Rb-NET) supported by the Queen Elizabeth Diamond Jubilee Trust in bringing together the many authors involved in writing this issue.
Articles in this issue –
- Retinoblastoma: a curable, rare and deadly blinding disease
- A national retinoblastoma network: experiences in Kenya and the UK
- Understanding retinoblastoma: epidemiology and genetics
- Germline retinoblastoma: estimating risk and counselling the family
- Detecting retinoblastoma
- Classification and staging of retinoblastoma
- Managing and treating intraocular retinoblastoma
- Standard reporting of high-risk histopathology features in retinoblastoma
- Management of retinoblastoma with extraocular tumour extension
- How to do an enucleation for retinoblastoma
- Testing the red reflex
- Making gains sustainable: partnering with WASH to stop the transmission of trachoma
- River blindness: reducing the prevalence of clinical disease
- Key community eye health messages
- Epidemiological and genetic considerations in retinoblastoma
- How we manage patients with retinoblastoma
- Standard reporting of high-risk histopathology features in retinoblastoma
- TNM8 classification
- Are we testing visual acuity adequately?
From our South Asia Edition –
- The role of advocacy and communication in reducing ROP in India
- Development of retinopathy of prematurity
- Retinopathy of prematurity: it is time to take swift action
- Classification of retinopathy of prematurity: from then till now
- The role of community health workers in prevention of blindness due to ROP
- Screening for ROP
- Treatment of retinopathy of prematurity (ROP)
- Key community eye health messages
- Role of neonatal team including nurses in prevention of ROP
- Innovations in technology and service delivery to improve Retinopathy of Prematurity care
- Evolution of ROP screening at Aravind Eye Hospital, Coimbatore – Lessons learnt and the way ahead
- Retinopathy of prematurity in Bangladesh: an overview
- The restless retina in aggressive posterior retinopathy of prematurity: prevention is better than cure
- Counselling and co-opting parents to get best outcomes